Useful Links for Patients

  • "The Laryngectomee Guide” by I. Brook MD.

Contains practical information on medical, dental and psychological issues, side effects of radiation and chemotherapy; speaking; airway, stoma, and voice prosthesis care, eating, swallowing, and travel.

Free download from   http://www.entnet.org/content/laryngectomee-guide

Available also as paperback at: http://dribrook.blogspot.com and Dr Brook's other book “My Voice, a physician’s personal experience with throat cancer” is also available on that website.

  •  "You can say That Again" by Alan Dear / The Cancer Council Australia / Laryngectomee Association of NSW

An easily readable reference, guide and helpline for people who are about to have, or have had, a laryngectomy. 

Visible at http://www.stilltalking.org/bookletV5.html

  • “Self Help for the Laryngectomee”  by E. Lauder.

Contained useful information. Very useful to learn oesophageal speech. It helps understand becoming and learning to live as a laryngectomee.

Can be downloaded for free at http://electrolarynx.com/Self_Help_for_the_Laryngectomee_book.pdf

Available also in paperback from: http://www.electrolarynx.com

  • "The Global Tracheostomy Collaborative" 

Providing tracheostomy patient forums, education and resources. 

http://globaltrach.org/collaborate/patients-families-portal/

  •  “Handbook for laryngectomy patients” 

    Published by the British National Association of Laryngectomee Clubs. Has information about the stoma care and return to normal life. Can be downloaded at

    http://www.laryngectomy.org.uk/files/7013/8600/0359/NALC_Handbook.pdf 

    • "Going Home with a Laryngectomy Stoma: A Guide for Patients and Carers"

    A guide for Laryngectomy patients from NSWHealth and Liverpool Hospital. 

    http://www.swslhd.nsw.gov.au/cancer/pdf/goinghome.pdf

    • Book: Dying to Know: A Guide to Death for Everyone Alive.

    We're all dying. Sooner or later we're going to croak, kick the bucket, give up the ghost, cash in our chips, shuffle off, bow out or go to our happy hunting ground. It's the one thing we all have in common. Yet no one seems to want to talk about it. 

    https://www.amazon.com.au/Dying-Know-Guide-Death-Everyone/dp/1740665538

    • The Groundswell Project

    We build communities that respond compassionately around end of life. For our communities to take action, we must socialise the conversation about death, dying and bereavement by providing opportunities for the community to re-develop a shared language for talking and planning for end of life using local resources and information. This helps to build people’s death literacy and connects people to one another, where they live and online.

    https://www.thegroundswellproject.com/about-us

    Articles: 

    The Cancer Council